Connor was born in March and diagnosed shortly afterward with tuberous sclerosis complex, a rare genetic condition that causes benign tumors to grow on organs. He spent five weeks in NICU while doctors tried to get his seizures under control. At four months old he had surgery to remove the brain tumor that was causing most of his seizures. He is doing much better now at 8 months old. He is giggly, happy and an easy baby as far as normal baby stuff goes. This was his first trip to his grandparents in Venice, Fl. He’s quite perplexed by the giant bathtub.
I’m trying to raise awareness of this disease because it shares the same neural pathways as autism, epilepsy, and many cancers. Research benefits everyone!
He’s darling. Very best wishes for him and for his family!
Check out Mixed Up Mommy for their journey with tuberous sclerosis.