Connor was born in March and diagnosed shortly afterward with tuberous sclerosis complex, a rare genetic condition that causes benign tumors to grow on organs. He spent five weeks in NICU while doctors tried to get his seizures under control. At four months old he had surgery to remove the brain tumor that was causing most of his seizures. He is doing much better now at 8 months old. He is giggly, happy and an easy baby as far as normal baby stuff goes. This was his first trip to his grandparents in Venice, Fl. He’s quite perplexed by the giant bathtub.
I’m trying to raise awareness of this disease because it shares the same neural pathways as autism, epilepsy, and many cancers. Research benefits everyone!
He’s darling. Very best wishes for him and for his family!
Check out Mixed Up Mommy for their journey with tuberous sclerosis.
An adorable son! What a trooper.
An amazing kid for sure!
Reblogged this on savvyhaney.
Thanks!
God bless you Conner! And your family too!!
Reblogged this on Mixed Up Mommy and commented:
Here is his post!
Thanks!
He is a bonny wee lad . . . babies have such unwitting courage.
All the best,
RR
Absolutely, thanks for dropping by, RR!
he’s cute. wishing him all the best!
For sure, he is just so inspirational!
Godly I love this divine beauty. thank you
Thank you everyone for the supportive comments about my baby!